May 26, 2006

Another giant leap for Zander!!!


Okay, first things first....My daddy and mommy and Grandpa Bob made me a blanket. It was one of the activities that was put on the March of Dimes Family Support Specialist. Mommy and daddy did not get to attend the regular scheduled activity so Carla, the FSS, was gracious enough to show them how to make a blanket. You can see daddy and Grandpa Bob getting all technical and engineer-like with it. Mommy helped too, but daddy did most of the work...Because he loves me!!!!:) I had mommy add a picture of the finished product so you could see it. One side is yellow with little smiley suns on it and the other side is solid blue. It was really easy to make and fun too, so they tell me.

Okay, okay, okay......GUESS WHAT??????????? I weigh 3 whole pounds now:):):)
Yeppers, my nurse weighed me last night and it's official, I'm getting big! Did I mention that I'm fourteen inches tall too??? Pretty soon I'm going to be bigger than my daddy...Like in 20 years.

So, I got a new sign to show I hit the 3 pound goal, and I've been doing pretty good for the most part. I haven't had any spit ups since the last time I wrote to all of you which means I'm keeping my food down really good. They've been lowering my ventilator settings ever so slightly each day and today the doctors told mommy and daddy that this weekend they plan to extebate me again. Meanies!!!!!!!!

My doctor #2 told mommy and daddy they are going to give me steroids again. This time they're not giving me the roids to help my lungs. Instead, they want me to have them because they are fearful that the scar tissue in my airway may cause me problems. Mommy cringed when she heard the word "steroids" again. She is afraid that I will do good for three days and then need to be intebated again. The doctor said she could possibly be right, but they have to try and get me off the ventilator, no matter what. Both mommy and daddy understand what the doctors are trying to do, but they have to be advocates for me and they think that less pain is probably better for me. I guess it will be an on-going argument until I am feeling well enough to go home.

So with the whole extabation and steroids combination, it is entirely possible that I will lose some weight over the next few days. Which really makes me sad because I worked so hard to reach 3 pounds. Hopefully, the doctors will increase my feedings so I can continue to pack on the pounds:)

Have a wonderful Memorial Day Weekend!!!!!!!!

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