I learned yesterday that if I throw a fit, I can get what I want!:) That is a really great thing!! I've been hanging out in my escape-pod bed since Tuesday with this CPAP thing on my nose and my party hat on my head. I've been doing really good, I'm told, staying off the ventilator.
I started out the day, Wednesday, doing my usual sleeping-breathing-eating-breathing-sleeping routine. Then, much to my surprise, daddy showed up to spend the day with me. He said that his work sent him home because the line he supervises was broken down. Whatever the reason, I didn't complain because now I get to have daddy with me all day.
In the afternoon, I showed daddy and the respiratory therapist my new trick....I can turn my head almost all the way over, even with the CPAP on my nose. I say almost because the CPAP prong thing always stops me half way. Daddy got mad at me when he kept finding me with my face buried in the pillow because I was trying to turn it. He says that I can't breathe when I do that, so I need to stop...it's kind of fun making daddy nervous:)
Eventually mommy came home and then I had them both with me. Jason and Tammy, good family friends, came to visit me and they said I was big!!!!:) I'd rather be big than little! They stayed for almost an hour and a half becuase they had to take turns seeing me. Jason and Tammy have two little boys, James and Kyle. They got to ride a real elephant a couple weeks ago at some place called a circus...I'm going to ask mommy and daddy to take me to one of those circus things too...then I can ride an elephant! Anyway, James and Kyle are young and little (not as little as me though) so the nurses won't let them visit me. They waited in the waiting room with Jason while Tammy visited me, then Tammy switched with Jason so he could see me. Jason is the computer guru who makes it possible for me to write on here while I'm in the hospital. Tammy is really pregnant now. She's going to have a baby sometime in the next 6 weeks...then I'll have another little friend:) Mommy and daddy think Jason and Tammy and the boys are awesome!!!!
After they left, it was just me and my mommy and daddy. My nurse talked about me getting a bath but said it wouldn't be until later in the evening. Well, I started throwing a fit about 10:00 pm. I flailed my arms and kicked my legs really hard. I tried to cry my loudest cry, but it's still not very loud:( Mommy heard me, though, and she came to hold my hand and try to figure out what was wrong. Here's a secret: Nothing was wrong, I just didn't want a bath:) Anyway, one of my favorite nurses came in. Her name is Lisa and she is one of my very best favorite nurses, but I haven't had her be my nurse in over a month, so I was very excited to see her. As excited as I was, I still did not want a bath! So she came in and mommy explained that I was throwing a fit. Nurse Lisa tried to re-position me, but no position was good enough for me, so finally she told mommy to sit down because I was coming out of my escape-pod.
Do you know that mommy held me in a completely different way last night????? I wasn't naked, and I didn't have to lay on her. I was still in my jammies and wrapped in a blanket and she held me in her arms so I could look right up at her. It was really comfortable!!! I loved being held by mommy, and I got to eat at the same time. Nurse Lisa started my food going through my NG tube while I was being held and I was in complete heaven. I did so good that Lisa told mommy she could never stop holding me. Mommy said she was okay with never letting me go, but she would need a doctor's excuse for work:)
After I was put back in my bed I slept really good. Then this morning I was awake when daddy left for work. About an hour later, I was still awake when daddy came back from work. This work thing seems pretty easy, I'm seeing lots of daddy lately and I love it! He told me and Nurse Lisa that his window-making line was still broken so he was going to stay with me until 8am. (daddy goes to work at 4:30am).
Well, my Nurse Lisa told daddy to sit down because he was going to hold me. Daddy argued with Nurse Lisa because I made him so nervous on Tuesday evening, but Nurse Lisa was not taking "no" for an answer. Daddy sat down and held me, just like mommy did last night!!! And I got to eat again. Nurse Lisa explained to mommy and daddy that they should hold me for as many feedings as they can because I'm more calm then. Mommy asked why no other nurses let them hold me like this, but my Nurse Lisa didn't know. She said she would pass on the message to all the nurses though! I'm so excited to be able to hold mommy and daddy when I want to:) I think that means I'm becoming a bigger little boy!!!!!
June 01, 2006
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